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I belong to a yahoo group for families living with Autism. Instead of writing things out all over again, I will include my post that I put on there.
"I don't usually post many things but I need to talk to someone who understands where I am coming from. I have 4 children and my 9 year old son is Autistic. My youngest is a little girl, who is 8 months old. Now I am sure that any of you who have more than one child can relate with me when I tell you my story. I am sure that most of you received that email regarding the study done by the University of Washington about rapid head growth from ages 6-9 months. Well, at my daughters 6 month well baby check, her doctor spoke with me concerning her head. She made it very clear that she was not concerned about the size per-say but how fast it was growing. They had me bring her back 6 weeks later to measure again and sure enough it shot up even more. It was that day that I received the email about the study. My heart sank. If any of you are anything like me, then I am sure that from the day you bring that new baby home from the hospital, you are analyzing EVERYTHING they do or do not do. Well I read that study and thought okay, well there is nothing we can do about it right now. Then I started noticing that she isn't even babbling yet. She coo's and smiles and interacts but there is absolutely NO babbling going on at all. She will however, lay there for long periods of time (20 minutes or so) and just growl. She may be playing with a toy or whatever but she just growls repetitively and it is always for a longer period of time and it happens several times a day.
Now I am not so stupid as to not understand that these signs could be "coincidental" however, I am also not so stupid as to ignore them either. Her next appointment isn't until her 9 month check up which isn't until next month. Should I get her in sooner? There is nothing they can do, I know this, but sometimes there is that level of comfort that comes with talking it through with someone other than your equally stressed out spouse. We are also debating on whether or not we should halt all vaccinations. We have never been ones to blame the vaccinations for our sons autism. We have said that yes, they may cause it or they may not. We have always leaned towards the saying "Autism will never take my child's life but measles could." However, if I can in some way prevent my precious little girl from having to face the every day struggles that my son faces than as a mother isn't that my job? To protect her?
As I sit and type this email my heart is torn and tears are streaming down my face out of shear frustration of not knowing what to do or where to turn. I consider myself VERY educated on Autism and I will say that my son is so special to me and I wouldn't change one thing about him as he is the way that God wanted him to be and quite honestly; there is nothing wrong with him. But I do see the every day struggles that he faces. I see him wanting to play with the other kids so badly and yet he just cant. It is agonizing to have to sit back and watch and not be able to help him more. I don't want my daughter to have to face those same obstacles. I am just so torn and desperately need someone to tell me they know how I feel and tell me I am not crazy for feeling the way I do. Who knows. Maybe I am crazy. Any thoughts would be greatly appreciated."
So this is where I am in life right now. I have a tendency to let things brew in my mind for long periods of time and I usually do not let them out. I of course am taking things to the extreme by getting so upset over something that 1) I have no control over and 2) Something that we will not even know for sure for months to come. That is who I am though and regardless, I am having a rough time. It doesn't matter how much I may or may not be over reacting. The point is that this is a huge thing to me personally right now. If any of you would like to check out the link to the study that I refer to, you can view that at:
http://www.sciencedaily.com/releases/2008/01/080130140127.htm
Let me know your thoughts.